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Caregiver & Service Provider Survey

Caregiver & Service Provider Surveys
RE: Persons Aging with a
Developmental Disability

Reena and Mary Centre of the Archdiocese of Toronto (Mary Centre) are updating the 2006 Transitional Guide – now renamed Aging with a Developmental Disability: Planning for Success.

The revised guide will assist caregivers and health and social service organizations in early planning for aging persons living with a developmental disability. We look forward to receiving your valuable input on the two anonymous surveys (see links below) by June 8, 2018.

Click Here for the Caregiver Survey

Click Here for the Service Provider Survey

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Press Release from Community Living (April 26, 2018)

April 26, 2018: Press release from Community Living Ontario

People with complex care needs to benefit from changes to home care services in Ontario 

Toronto, ONTARIO – Community Living Ontario is pleased with recent changes made by the Ministry of Health and Long-Term-Care regarding the regulation governing the provision of home care services in the province. Effective April 1, 2018, the government amended the home care service maximums set out in Regulation 386/99 of the Home Care and Community Services Act. The amendment increases the combined service maximum for homemaking and personal support services to 120 hours in any 30-day period. In addition, people with complex care needs are now defined under the regulation and are exempt from the service maximum and nursing service maximums.

 “Community Living Ontario believes the changes will provide much needed support and safeguards for many Ontarians,” said Community Living Ontario CEO, Chris Beesley, “in particular, for people who have an intellectual disability at risk of being inappropriately moved from their home to a long-term care facility as a result of their need for support.”

“We expect that the government will also use the regulatory change as a tool to help the estimated 2,000 people who have an intellectual disability and who are inappropriately housed in long-term care facilities to plan for a return to the community.”

The regulatory change follows a human rights complaint brought forward by Audrey Cole and her son, Ian, in 2016. At the time, Community Care Access Centre in Lanark County informed the Coles that Ian would have to move to a long-term care facility in order to get the daily nursing care he required. Ian lives in his own home with a roommate, and there was no question about his desire to continue to do so. The only barrier to this occurring was the fact that he needed five brief nursing visits a day, one more than was previously allowed by the Ministry of Health and Long-Term Care.

Community Living Ontario, along with People First of Ontario, the Canadian Association for Community Living, and the Ontario Human Rights Commission, supported the Coles and applied to intervene in the case. The effort resulted in an initial increase in the caps on home care visits in 2016, which was followed by a consultation process to explore additional ways of ensuring that people with complex support needs were able to live in their own home and receive the assistance they required. The recent regulatory change is in response to recommendations of the consultation process to define complex needs under home care and to make provisions to allow service support maximums to be responsive to the unique needs of those who meet the definition.

“There have been very positive consequences for Ian since the regulation was first changed from four to five nursing visits,” said Audrey Cole. “Not only does Ian get to stay in his own home, he now receives the necessary nursing visits and has had only one infection requiring antibiotics since.”

“With the flexibility now provided under the amended regulation, such situations should never arise. That alone represents a major change in community health care for which Ian and I are very grateful.”

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Community Living Ontario is a family-based association assisting people who have an intellectual disability and their families to lead the way in advancing inclusion in their lives and in their communities. We represent more than 12,000 people, families and over 100 member organizations across the province.

For additional information and interview requests, contact:

Ron Laroche
Director, Communications, Marketing and Fund Development
Community Living Ontario
Cell: 1-416-707-4907

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Do you enjoy working with people?

Are you looking for a way to give back to your community? Do you enjoy working with people?
Would you enjoy guiding and supporting individuals with special needs, by assisting them to become more involved in their community?

Northumberland Family Respite Services assists families by screening independent service providers and providing a registry they can access. Families are looking for people to provide respite for their family members with special needs. If you are someone who is interested in assisting individuals to lead a fulfilling, healthy, well balanced life, this may be for you. You could be asked to provide support for the individual to learn life skills, social skills and independent living skills. You could even be asked to take a child to the park or do a craft with them so mom and dad could take a much needed break.

If this sounds like something you would enjoy doing please contact Don Schonhoffer at 905-885-6671 ext. 222 or by email at For screening purposes you should be prepared to provide a police check, including a vulnerable persons check and references.

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Canada Summer Jobs 2017

The Canada Summer Jobs (CSJ) 2017 initiative is delivered by Service Canada on behalf of Human Resources and Skills Development Canada (HRSDC) and is designed to provide wage subsidies to help Canadian employers — not-for-profit organizations, public-sector and smaller private-sector employers (50 or fewer full-time employees) — create career-related summer jobs for students between the ages of 15 and 30 at the start of employment. An employee must have been registered as a full-time student in the previous academic year and intend to return to school on a full-time basis in the next academic year. An employee must be a Canadian citizen, permanent resident, or person with official refugee status.

We are pleased and thankful to announce that we have been approved to hire 2 university students through the Canada Summer Jobs initiative. The outcomes achieved will provide parents with temporary relief from the physical and emotional demands involved in caring for children/youth with complex special needs.

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March 21, 2017: “Love Builds Brains” presentation

Love Builds Brains presentation imageNorthumberland Best Start Network invites you to come and join us for this insightful and inspiring presentation by Dr. Jean Clinton, clinical professor with the Department of Psychiatry & Behavioural Neurosciences at McMaster University.

In her presentation, Dr. Clinton explores the developing brain and the crucial role that relationships with others play in healthy development.

Relationships that are warm, responsive, and predictable help our children thrive.
Relationships that generate intense stress can harm the developing brain.

Dr. Clinton presents the science in a very accessible way. You won’t want to miss it!

Limited seating is available for this FREE event. FREE child minding on-site andd FREE transportation to the event will be available.

Date: Monday March 27th, 2017
Time: 7-9pm
Location: Cobourg Lions Community Centre, 157 Elgin St. E.
Registration: email or call 289-252-1598 x 234 (Deadline for registration is Tuesday, March 21, 2017)

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Some great FREE workshops for October!

October has some great workshops happening. Spots are still available. Don’t miss your chance to attend these great learning opportunities, register today!

Teens with ASD: Navigating the High School World and Beyond!

This interactive and practical workshop will cover numerous practical topics of interest for teens on the spectrum and other adults in their lives. Topics will include: navigating the social world of friends, tips for successful dating, planning and succeeding in college and many more.
Date: Wednesday, October 5, 2016
Time: 10:00-3:00

You Have Nothing to Fear but Fear Itself: Assisting Individuals with ASD to Cope with Anxiety

Many individuals with ASD have high anxiety levels. This workshop will explore the possible reasons for anxiety and various techniques, strategies and resources to assist individuals on the spectrum to get to a calmer state. The information in this workshop applies to all ages and abilities of individuals with ASD and would be beneficial to parents/guardians, support/respite workers and teachers.

Date: Friday, October 7, 2016
Time: 9:30-3:30

Understanding the Hidden Curriculum

This workshop will assist individuals on the autism spectrum to develop a greater understanding of the hidden social information (e.g. hidden curriculum) in our world and how to generalize it to other settings. It will review what the hidden curriculum refers to and it’s complexity, cover an understanding of why individuals with ASD have difficulty in this area, and discuss strategies and resources useful in learning and generalizing the hidden curriculum. Part of the workshop will focus on the experiences of the participants.

Date: Friday, October 14, 2016
Time: 9:30-3:30

Positive Parenting

Parents will learn how to recognize and respond to their child’s inappropriate behaviours; the difference between reinforcement and punishment; recognize when it’s not just a phase; and the 5 rules to positive parenting.

Date: Tuesday, October 25, 2016
Time: 9:00-3:00
Location: *available via video conference*
Registration: email to reserve your spot

Stand Up to Bullying

Understanding strategies that will help children and youth with ASD prevents incidents of bullying and will help them feel more socially confident and improve their relationships with peers. This workshop will explore ideas and strategies that will help parents and caregivers identify the signs that indicate that a child or youth is a victim of bullying and teasing, and discuss strategies that will help build skills to prevent the problem of victimization and bullying.

Date:Thursday, October 27, 2016
Time: 9:30-12:00
Location: *available via video conference*
Registration: email to reserve your spot

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Focus Group participants needed

The Ministry of Community and Social Services will be holding focus groups with individuals and families that take part in ministry-funded services and supports. These focus groups will be taking place in September 2016 (rescheduled from July 2016).

Participation in these focus groups is voluntary and will not affect the supports that individuals are currently receiving. The feedback we receive is confidential, and your individual responses or information will not be published.

We want to better understand what things in life you would like developmental services to help you or your family member achieve.

The ministry values feedback from individuals and their families on their experiences and we recognize that ongoing engagement is key to making meaningful improvements to the developmental services system.

The focus groups will be held in the following areas in late September:

Ottawa (in person): Monday September 19th, 2016–3:00 to 4:30pm, 5:00 to 7:00pm
Thunder Bay (in person): Wednesday September 21st, 2016–3:00 to 4:30pm, 5:00 to 6:45pm
Toronto (in person): Thursday September 22nd, 2016–3:00 to 4:30pm, 5:30 to 7:30pm
London (in person): Monday September 26th, 2016: 3:00 to 4:30pm, 5:30 to 7:30pm
Video-conference for remote and isolated communities: Wednesday September 28th, 2016–3:00 to 4:30pm, 5:00 to 7:00pm

If you’re interested and you live within 100 kilometres of any of these locations, please reply to the ministry before Friday September 2nd by completing an online registration form using this URL/link:

Or you can register by calling Darren Cyr in MCSS’ Policy Research and Analysis Branch (PRAB) at 416-314-4640.

For those who registered for the original July focus groups, we ask that you please re-register, confirming your interest and availability for the new September dates.

The location for the sessions will be sent to those selected to participate. Each focus group will last 1.5 – 2 hours. In appreciation for your time, you will receive a light meal, and we will cover transportation costs (e.g., public transit, taxi, mileage) and other eligible expenses (e.g., parking, personal support worker if needed) (receipts required).

If you have any questions about these focus groups please contact Darren Cyr at the ministry at 416-314-4640 or email

For more information, refer to the Questions and Answers document here.

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Invitation for Family Members and Caregivers: MCSS Focus Groups

The ministry is holding focus groups with individuals and families that take part in ministry-funded developmental services and supports. The ministry wants to hear directly from individuals and families about what things in life they would like developmental services to help them or their family members achieve such as meaningful employment, independence or more inclusion in their community. Your input will help shape the development of the DS Performance Measurement Framework.

Detailed Information about the Focus Groups here (PDF)

Developing Performance Measures for Adult Developmental Services: Questions and Answers for Individuals and Family Members/Caregivers (PDF)

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Wednesday Feb. 24: Office Closed

Important notice: Due to inclement weather, the office of Northumberland Family Respite Services will be closed for the day. Staff will be available by phone if you need assistance.

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Tuesday February 12: Office Closed due to weather

Important notice: Due to inclement weather, the office of Northumberland Family Respite Services will be closed for the day. Staff will be available by phone if you need assistance.

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